Recently diagnosed with an incurable and fatal disorder,

Danielle is intent on living a full life and helping others do the same. 

Danielle Valenti

Huntington's Disease Advocate, Lover of Life

 

Facing Death Full of Life

 

Watching your mother wither away—and eventually die—from an incurable brain disorder would be horrific enough for most people. But Danielle survived that burden only to find she was doomed to the same fate. Knowing it isn't a matter of “if” but “when”. Danielle refuses to let her terminal diagnosis of Huntington’s Disease stop her from living a full life.

 

Why You Should Listen

 

Committed to helping others, Danielle has volunteered for numerous organizations over the years. She currently is actively involved with Huntington’s Disease Society of America (HDSA) and serves on the board of the Albany Affiliate. She is passionate about generating awareness of this incurable disease, and periodically participates in educational workshops. She shares her and her mother's story. As an HDSA advocate, she hopes to convince legislators to enact a compassionate dying law that will include people with HD.  

 

About Danielle

 

Born and raised in the Berkshires, Danielle studied communications and marketing at Western New England University in Springfield, MA. She is currently vice-president for customer success at Merit, a tech company in Albany, and lives in Troy, NY, with her boyfriend, a crazy puppy and a love for traveling. When she has spare time, Danielle meditates and practices yoga for physical and mental strength.

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 PO Box 18, Lenox MA 01240

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